IC Optimist – Winter 2026 Print

We are delighted to issue our Winter 2026 IC Optimist. The flagship publication of the IC Network, our patient magazine provides feature stories, comforting self-help tips, the latest research, meeting notes, and new articles on the IC diet.

In this issue:

Editorial - Why Bladder Therapies Often Don't Work

In 2026, our approach to IC has been transformed for the better. With phenotyping, we can more easily identify the underlying cause of our symptoms, which leads to better and more effective treatment. That said, some patients may not fit easily into these distinct groups. There are a lot of conditions that can mimic IC. In this issue, we focus on several conditions that are often missed in the IC diagnostic workup. 

Case Study: An Unusual Connection Between Migraines, Vulvodynia, IC and Cognitive Decline: Pelvic Blood Supply

Our first case study shares the story of a patient who had horrific migraines, pelvic pain, pain with intimacy, anxiety and depression. But then she started struggling with her memory and what appeared to be cognitive decline. Dozens of doctors missed the underlying cause of her symptoms. A varicose vein on her vulva led to her eventual cure. 

Lyme Disease and Interstitial Cystitis

If you’ve been bitten by a tick and developed Lyme disease, you, too, may struggle with urinary symptoms. We share the story of one of our members whose IC symptoms eventually improved when her Lyme disease was treated. 

New Study Links Prolapse with IC Symptoms 

The pelvis is a small, confined space with little room to spare. But, when muscles weaken, organs can fall out of place, resulting in a prolapse. Yes, this too can mimic IC. The good news is that when the prolapse is repaired, urinary symptoms often improve dramatically.

Understanding Lichen Sclerosus

The quality and health of your skin matter. Lichen sclerosus is rarely discussed but frequently encountered among IC patients. This autoimmune condition can affect both men and women, causing agonizing pelvic pain and urinary symptoms. 

The Evolution of IC/BPS Phenotyping

There has been considerable debate about IC/BPS phenotypes in the last ten years but every IC researcher now agrees that there are distinct patient groups, each with their unique treatment strategies. In this article we review the history of the different systems proposed, as well as a new system released last year produced by an international group of IC experts. 

Furthering IC Research

If we are to advance IC research throughout the world and truly work as a team, we need consensus on key points about IC. A 2025 meeting has begun this vital, foundational work. 

Feature Story - IC/BPS Myths & Facts: Busting the Misconceptions That Keep Patients Hurting

Stacey Shannon busts the misconceptions that have kept so many patients confused and in distress. No, my friends, IC is not just a bladder infection nor is it all in your head.

IC Flare Survival Kit 

We can do our best to avoid flares with diet, medications and supplements, but sometimes they are just plain unavoidable. Having an IC flare survival kit at the ready can make those hard-hitting flares just a bit more manageable. Sometimes it really is the small stuff that makes a big difference when we aren’t feeling well. 

Self-Help Tip: Starting A New Year When You’re Already Exhausted

Let’s start the New Year Right with strategies for maintaining a calm, stress-free state of mind. God knows, we’re all struggling right now with unusually high levels of stress and exhaustion. 

The Battle of Recurring UTIs

The founders of the Femetry line of products contributed to an article on how to battle recurring UTIs and how you can help to prevent future infections. 

Old Fashioned Comfort Food

It’s been an absolutely wicked cold and flu season. In my family, we’re now in round two of influenza. I can’t remember a season this bad. So, I thought I’d share two of our most comforting chicken recipes, great for cold winter days or anyone struggling with the sniffles!

Overcoming Fear of the IC Diet

When flares come on suddenly, often after eating a food that you thought was safe, it’s only natural to become confused, if not, fearful of your next meal. Stacey Shannon shares a fabulous article on how to navigate the IC diet and find foods that should not trigger flares. 

Pages: 36

Publisher: Interstitial Cystitis Network